This is really a reply to a question someone asked at one of the forums i go to yesterday…. I thought I should post this here though it’s not very interesting…. maybe that’s why…
Question: What are your days like?
wake up (normally) around 6 or 7am…
get dressed… and turn on the computer… start my email program
flush the tube /get meds down the tube /flush tube again/and hook back on to the feeding pump
get on the computer
depending on the day… i may have a doc/therapy appt, (pdoc/therapist or tummy doc)
get on the computer again
My wife might come by (sometimes the kids come too) …especially if she needs to see my doc 😐
maybe play the piano a little
visit from my wife or my sister….
computer…if i’m lucky to get access to the public computer (or even luckier than lucky… my own computer)…
flush the tube /get meds down the tube /flush tube again/and hook back on to the feeding pump …
(there is a lot more tube stuff that has to be done through out the whole day…. more flushing …getting more formula…. boring stuff like that…)